Health

Western Australia Disability Services launches online care resource for people with Down syndrome



The Western Australia Disability Service is up and running with a new website providing information on the health considerations of people with Down syndrome.

The My Voice My Health website was designed by Down Syndrome Western Australia through funding provided by the state Department of Communities.

An online resource center with information on health topics relevant to people with DS; a list of public health providers, peak agencies, and nonprofit organizations across WA that provide support for health conditions that affect people with DS; and resources for health professionals, including checklists and communication tips for working with people with DS and other developmental disabilities.

WHY IT IMPORTANT

It is estimated that around one in 1,100 babies born in Australia will have Down syndrome, which is one of the most common chromosomal disorders in the world.

In a media release, Disability Services Minister Don Punch said the My Voice My Health website will empower families, carers and people living with DS with vital information and a “a useful tool when visiting medical professionals”.

“People with Down syndrome are leading long and fulfilling lives, with many opportunities to make their own choices and live independently. My Voice My Health is an excellent example of how we can all be. using information technology to help people with disabilities have their best lives,” he said.

SNAPSHOT . MARKET

Other countries have also launched similar digital resources to support the well-being of people with DS. In the UK, the Down Syndrome Society has developed the Health Exchange app to empower people with DS to make positive lifestyle choices while improving their digital skills.

In the United States, a platform called Down Syndrome Clinic for You provides personalized, up-to-date health and wellness information for people with DS. It also helps caregivers and primary care providers provide evidence-based care when a specialist is not available. It was developed by research and clinical teams from the Down Syndrome Program and the Computer Science Laboratory at Massachusetts General Hospital, an academic hospital affiliated with Harvard Medical School.



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